Patients with ATP6V0c

You are not alone!

This map shows the known cases of patients with ATP6V0c (May 2023).

You might discover cases closer to you, or you might not be featured in the map, which mean we need to bring you in and to know where you are.

Working in bringing us all together!

This world map shows the known cases of patients with ATP6V0c genetic disorder (May 2023).

This is a work in progress and we welcome anyone with new information that can accelerate knowledge and access to patients, on-going research, treatments, therapeutics and medical practices.

We are not alone!

We are working on a ATP6V0A1 and ATP6V1A patient map as well.

If you are able to help, reach out to us.

Please consider that sometimes patients are referred from other near cities, so we might not have an exact match illustrated.

We are a REGISTERED 501(C)(3) NONPROFIT organization

Nonprofit Tax ID Number - EIN: 93-4759423

mailing address:

14781 Memorial Dr. #145, Houston tx 77079

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Together we stand

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Joseph's family is hosting the #JoeJoeStrong fundraiser to benefit the v-ATPase Alliance.

Get to know JoeJoe's story, his family and what we are all fighting for:

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