2025 is the #YearOfAction. Get involved!

Hi Friends,

My family/My good friend is affected by v-ATPase Rare Genetic Syndrome. This is an ultra-rare genetic disorder and there isn’t much information available. Even after receiving a diagnosis, families still don’t know what to expect, how to manage it, and what the best care plan should be.

It would mean so much to me if you would support this Alliance. They are the only organization in the world aiming to unite families, advance scientific research to know more about these conditions and enable the development of effective treatments for v-ATPase children. They are just starting, but you can see their dedication and how much they have already achieved on their own. Their effort can be multiplied if we help grow their reach, spread their mission and vision, and contribute to help achieve their goals, which are our goals.

So, just like I am doing, please forward this email to your contacts, learn about this organization and, if you can, support their cause. All information can be found at www.vatpasealliance.org 

You can also check out their social media at:

Facebook: https://www.facebook.com/vatpasealliance

Instagram: https://www.instagram.com/vatpasealliance

X (former Twitter): https://twitter.com/vatpasealliance

LinkedIN: https://www.linkedin.com/company/vatpasealliance/

Thank you for your support!

Best,

Your Name

My family/My friend is affected by v-ATPase Rare Genetic Syndrome. 

This is an ultra-rare genetic disorder and there isn’t much information available. Even after receiving a diagnosis, families still don’t know what to expect, how to manage it, and what the best care plan should be.

It would mean so much to me if you would support this Alliance. They are the only organization in the world aiming to unite families, advance scientific research to know more about these conditions and enable the development of effective treatments for v-ATPase children. They are just starting, but you can see their dedication and how much they have already achieved on their own. Their effort can be multiplied if we help grow their reach, spread their mission and vision, and contribute to help achieve their goals.

Will you please “like” and share this post with your networks, learn more about this organization, and support their cause if you’re able? 

Please also follow their Page at www.Facebook.com/vatpasealliance and their Instagram at https://www.instagram.com/vatpasealliance Even more information can be found at www.vatpasealliance.org.

Thank you for caring about the children and families impacted by this ultra-rare disease!

#vATPase

#CareAboutRare

#RareDiseaseAwareness

#nonprofit

#2024yearofAction

#ATP6V1A

#ATP6V0C

#ATP6V0A1

#ATP6AP2