SPARK Meetings - Registratrion Open (required)

SPARK Meetings stands for  Scientists for Progress in v-ATPase Research and Knowledge,  hosted by the v-ATPase Alliance.

The SPARK Meetings provide a dedicated platform for the global scientific community to converge. We host bimonthly virtual consortium calls that convene experts from academic labs, pharma/biotech companies, CROs, and other organizations dedicated to research efforts related to the v-ATPase complex.

To move the needle on rare disease research, the SPARK Meeting series focuses on three core objectives:

• Assess & Evaluate: Analyzing the current state of v-ATPase research to identify gaps and opportunities.
• Prioritize Challenges: Identifying the critical path toward understanding the v-ATPase complex and developing therapies for children facing neurodevelopmental and epileptic challenges.
• Drive Priorities: Soliciting expert recommendations to shape global research priorities.

Hosted by the v-ATPase Alliance

We are a passionate and dedicated community of parents, caregivers, scientists, and advocates united by a common mission: to improve the lives of individuals affected by rare genetic mutations in v-ATPase. Our story is one of resilience, hope, and an unwavering commitment to bringing positive change to those living with these ultra-rare diseases. Through SPARK, we bridge the gap between patient advocacy and world-class science.

Join us on the second Monday of every other month at 10:00 AM ET. 

📅 Kick-off: January 12, 2026 | 10:00 AM ET 

📍 Where: Online (Global Consortium). 

Registration required.

2026 Meeting Schedule:

• Jan 12, 2026 
• Mar 9, 2026
• May 11, 2026
• Jul 13, 2026
• Sep 14, 2026
• Nov 9, 2026

Questions? We are here for you, email us at research@vatpasealliance.org