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    • Home
    • About Us
    • Get Involved
    • Research
      • OUR BOARD
      • DCP RESULTS
      • MD TALKS
      • LITERATURE
    • Family Resources
      • PATIENT REGISTRY
      • STUDIES
      • WHAT IS V-ATPASE
      • HUMAN DISEASES
      • GENETIC TESTING
      • OUR WARRIORS
      • TELL YOUR STORY
      • NEWSLETTER
      • FACEBOOK GROUP
    • Contact
Hi 👋⁠
  • Home
  • About Us
  • Get Involved
  • Research
    • OUR BOARD
    • DCP RESULTS
    • MD TALKS
    • LITERATURE
  • Family Resources
    • PATIENT REGISTRY
    • STUDIES
    • WHAT IS V-ATPASE
    • HUMAN DISEASES
    • GENETIC TESTING
    • OUR WARRIORS
    • TELL YOUR STORY
    • NEWSLETTER
    • FACEBOOK GROUP
  • Contact

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We have a private Facebook Group to support families.

We welcome families and the research community to come together to share and connect.
  • We welcome families and the research community to come together to share and connect.
  • We welcome families and the research community to come together to share and connect.
  • We welcome families and the research community to come together to share and connect.
  • We welcome families and the research community to come together to share and connect.
  • We welcome families and the research community to come together to share and connect.
Donate

 Every 6th of every month, we will hold a recurring meeting to provide updates, share stories, offer an opportunity to ask and answer questions, connect with each other, and meet new members.

Why the 6th? 🤔
All v-ATPase genes start with ATP6V-, so we decided to use the 6 as the unity symbol. On the 6th, we meet! 😉

Let's take the time to check in with each other and move forward together, united! 🚀 💪  

Register to attend

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We are a REGISTERED 501(C)(3) NONPROFIT organization.

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