We have a private Facebook Group to support families.
Every 6th of every month, we will hold a recurring meeting to provide updates, share stories, offer an opportunity to ask and answer questions, connect with each other, and meet new members.
Why the 6th? 🤔
All v-ATPase genes start with ATP6V-, so we decided to use the 6 as the unity symbol. On the 6th, we meet! 😉
Let's take the time to check in with each other and move forward together, united! 🚀 💪