We have a private Facebook Group to support families.
Every 6th of every month, we will hold a recurring meeting to provide updates, share stories, offer an opportunity to ask and answer questions, connect with each other, and meet new members.
Why the 6th? 🤔
All v-ATPase genes start with ATP6V-, so we decided to use the 6 as the unity symbol. On the 6th, we meet! 😉
Let's take the time to check in with each other and move forward together, united! 🚀 💪
Limited time only!
Join the Movement:
The 3rd Annual "Care About Rare" Sale is Live!
Rare Disease Day is coming, and back by popular demand, our "Care About Rare" apparel is here for the third year running! 🦓
Wear the mission.
Start the conversation.
When you wear your stripes, you aren’t just showing solidarity - you’re becoming an ambassador for our community. Every shirt and hoodie is designed to start important conversations about v-ATPase disorders, helping us bring rare diseases out of the shadows and into the spotlight.
🕒 Orders close February 10th
Order today and be ready to wear it on Feb 28th.