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Hi πŸ‘‹β 
  • Home
  • About Us
  • Get Involved
  • Research
    • OUR BOARD
    • DCP RESULTS
    • GENE PASSPORTS
    • MD TALKS
    • LITERATURE
    • SPARK
  • Family Resources
    • WHAT IS V-ATPASE
    • HUMAN DISEASES
    • ROADMAP TO A CURE
    • PATIENT REGISTRY
    • STUDIES
    • GENETIC TESTING
    • OUR WARRIORS
    • TELL YOUR STORY
    • FACEBOOK GROUP
    • FAMILY MEETING
    • NEWSLETTER
    • NEWS
  • Contact
  • 🌐︎

press

Foundation Quartely, the Epilepsy Foundation Magazine, with a feature on v-ATPase Alliance co-founde
Swoon Memorial, featuring Run For Rare 2025

Podcast

Watch on Youtube
Watch on Youtube

TV

TVI - Portuguese Channel - Interview with 2 of the founders about their child Dani, ATP6V0c patient

Press Releases and Media Kit

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We are a REGISTERED 501(C)(3) NONPROFIT organization  

 Nonprofit Tax ID Number - EIN: 93-4759423


mailing address:

14781 Memorial Dr. #145, Houston tx 77079

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