Purpose: To bring families together to share updates, provide opportunities to ask questions, share stories, introduce new families to the community and connect with one another.
Frequency: Monthly, on the 6th of each month.
Format: Virtual (Zoom)
Accessibility: Linguistic inclusion is key. We provide LIVE translation/subtitles for 100+ languages.
How to join: Look for a calendar invite or check the family support group on Facebook for a link.
Symbolism: The 6th was chosen as the unity symbol because all v-ATPase genes start with "ATP6V-".
Submit your questions beforehand (or save them for the live session!).
& Show up! ❤️🚀💪🦓
On the 6th, we meet! 😉
Let's take the time to check in with each other and move forward together, united! 🚀 💪
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