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Hi πŸ‘‹β 
  • Home
  • About Us
  • Get Involved
  • Research
    • OUR BOARD
    • DCP RESULTS
    • GENE PASSPORTS
    • MD TALKS
    • LITERATURE
    • SPARK
  • Family Resources
    • WHAT IS V-ATPASE
    • HUMAN DISEASES
    • ROADMAP TO A CURE
    • PATIENT REGISTRY
    • STUDIES
    • GENETIC TESTING
    • OUR WARRIORS
    • TELL YOUR STORY
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December 2026

Presenting at AES @ Denver, CO and Online

The American Epilepsy Society (AES) Annual Meeting is the premier international conference for epilepsy professionals, bringing together healthcare providers, scientists, advocates, and industry experts.


 Visit us, Denver, CO, USA:

πŸ—“οΈ Saturday, Dec 5 | 12–2 PM MT

πŸ“ Poster #1.087 | Session 1

June 2026

Presented at ECRD @ Prague and Online

European Conference on Rare Diseases & Orphan Products (ECRD)β€―is the largestβ€―patient-led policy-shaping eventβ€―on rare diseases in Europe.  2026 edition was titledβ€―β€œRare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”.β€―

Research Library
August/September 2025

Presented at ICE @ Lisbon, Portugal

36th International Epilepsy Congress (IEC 2025),  co-organized by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE) highlighted this year by Patient and Public Involvement (PPI) 

Research Library

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We are a REGISTERED 501(C)(3) NONPROFIT organization  

 Nonprofit Tax ID Number - EIN: 93-4759423


mailing address:

14781 Memorial Dr. #145, Houston tx 77079

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