If you have a birthday coming up consider making it super special and help v-ATPase Alliance fundraise.
We can help you set up your campaign to support a great cause while celebrating a special day.
Together let's put Hope into Action! #SupportAndCelebrate
Dani's birthday is coming up. Please help his family raise funds to put Hope into Action and be able to support not only Dani, but all v-ATPase families!
Jacob's birthday is coming up. Please help his family raise funds to put Hope into Action and be able to support not only Jacob, but all v-ATPase families!
We're not just an Alliance of gene-related disorders, but also of disruptive ideas, positive energy, creativity, and compassion.
Our collective thinking makes us better.
So, if you have suggestions, feedback, or new ideas, reach out to us.
We would love to connect with you!
If you want to get involved alongside us, reach out and let us know your availability and talent. We need help with legal, social media, design, fundraising, grant writing and more. It can be a one-time thing or something recurring.
Our team is awesome and easy to work with!
Send an email to 20+ friends and family members spreading our word, our mission and feel free to use the template below or personalize your message.
Follow up and Share our content across all social media.
Our handle is always @vatpasealliance across all platforms – Facebook, Instagram, LinkedIn, X (Twitter), Threads.
You can build on the post suggestion bellow, together with some unique graphics!
Hi Friends,
My family/My good friend is affected by v-ATPase Rare Genetic Syndrome. This is an ultra-rare genetic disorder and there isn’t much information available. Even after receiving a diagnosis, families still don’t know what to expect, how to manage it, and what the best care plan should be.
It would mean so much to me if you would support this Alliance. They are the only organization in the world aiming to unite families, advance scientific research to know more about these conditions and enable the development of effective treatments for v-ATPase children. They are just starting, but you can see their dedication and how much they have already achieved on their own. Their effort can be multiplied if we help grow their reach, spread their mission and vision, and contribute to help achieve their goals, which are our goals.
So, just like I am doing, please forward this email to your contacts, learn about this organization and, if you can, support their cause. All information can be found at www.vatpasealliance.org
You can also check out their social media at:
Facebook: https://www.facebook.com/vatpasealliance
Instagram: https://www.instagram.com/vatpasealliance
X (former Twitter): https://twitter.com/vatpasealliance
LinkedIN: https://www.linkedin.com/company/vatpasealliance/
Thank you for your support!
Best,
Your Name
My family/My friend is affected by v-ATPase Rare Genetic Syndrome.
This is an ultra-rare genetic disorder and there isn’t much information available. Even after receiving a diagnosis, families still don’t know what to expect, how to manage it, and what the best care plan should be.
It would mean so much to me if you would support this Alliance. They are the only organization in the world aiming to unite families, advance scientific research to know more about these conditions and enable the development of effective treatments for v-ATPase children. They are just starting, but you can see their dedication and how much they have already achieved on their own. Their effort can be multiplied if we help grow their reach, spread their mission and vision, and contribute to help achieve their goals.
Will you please “like” and share this post with your networks, learn more about this organization, and support their cause if you’re able?
Please also follow their Page at www.Facebook.com/vatpasealliance and their Instagram at https://www.instagram.com/vatpasealliance Even more information can be found at www.vatpasealliance.org.
Thank you for caring about the children and families impacted by this ultra-rare disease!
#vATPase
#CareAboutRare
#RareDiseaseAwareness
#nonprofit
#2024yearofAction
#ATP6V1A
#ATP6V0C
#ATP6V0A1
#ATP6AP2
1) Copy-Paste to Facebook, LinkedIn or Instagram.
2) Add graphics/images to use along with the publication in the link bellow.
3) Post and Share!
We appreciate you!
Copyright © 2024 v-ATPase Alliance - All rights reserved.
We are a REGISTERED 501(C)(3) NONPROFIT organization.