Donate HERE and directly support v-ATPase medical research Click here!

Hi πŸ‘‹β 
  • Home
  • About Us
  • Get Involved
  • Research
    • OUR BOARD
    • DCP RESULTS
    • MD TALKS
    • LITERATURE
  • Family Resources
    • PATIENT REGISTRY
    • STUDIES
    • WHAT IS V-ATPASE
    • HUMAN DISEASES
    • GENETIC TESTING
    • OUR WARRIORS
    • TELL YOUR STORY
    • NEWSLETTER
    • FACEBOOK GROUP
  • Contact
  • More
    • Home
    • About Us
    • Get Involved
    • Research
      • OUR BOARD
      • DCP RESULTS
      • MD TALKS
      • LITERATURE
    • Family Resources
      • PATIENT REGISTRY
      • STUDIES
      • WHAT IS V-ATPASE
      • HUMAN DISEASES
      • GENETIC TESTING
      • OUR WARRIORS
      • TELL YOUR STORY
      • NEWSLETTER
      • FACEBOOK GROUP
    • Contact
Hi πŸ‘‹β 
  • Home
  • About Us
  • Get Involved
  • Research
    • OUR BOARD
    • DCP RESULTS
    • MD TALKS
    • LITERATURE
  • Family Resources
    • PATIENT REGISTRY
    • STUDIES
    • WHAT IS V-ATPASE
    • HUMAN DISEASES
    • GENETIC TESTING
    • OUR WARRIORS
    • TELL YOUR STORY
    • NEWSLETTER
    • FACEBOOK GROUP
  • Contact

2024 is the #YearOfAction. Get involved!

2024 is the #YearOfAction. Get involved!

2024 is the #YearOfAction. Get involved!

2024 is the #YearOfAction. Get involved!

2024 is the #YearOfAction. Get involved!

2024 is the #YearOfAction. Get involved!

Multiple actions you can take to get involved

Find out ways to get involved and donate to our cause.
Find out ways to get involved and start a fundraiser for our cause.
Find out ways to get involved and volunteer to our cause.
Find out ways to get involved and create a Birthday campaign
Find out ways to get involved and be a participant member of our Community.
Find out ways to get involved and share your story, your child story or your family story.
Find out ways to get involved and honor a loved one
Find out ways to get involved and share our content, spread the word and raise awareness.

CREATE your facebook campaign

Create your own Birthday Campaign

If you have a birthday coming up consider making it super special and help v-ATPase Alliance fundraise. 

We can help you set up your campaign to support a great cause while celebrating a special day. 

Together let's put Hope into Action!  #SupportAndCelebrate 

Get started. Click here!

click here

past facebook campaigns

Daniel's Birthday Campaign

Dani's birthday is coming up. Please help his family raise funds to put Hope into Action and be able to support not only Dani, but all v-ATPase families!

https://www.facebook.com/donate/1565699354299245/

Jacob's Birthday Campaign

Jacob's birthday is coming up. Please help his family raise funds to put Hope into Action and be able to support not only Jacob, but all v-ATPase families!

https://www.facebook.com/donate/791477152792209

run out of ideas? Reach out to us

Have ideas to share?

 We're not just an Alliance of gene-related disorders, but also of disruptive ideas, positive energy, creativity, and compassion.

 Our collective thinking makes us better. 

So, if you have suggestions, feedback, or new ideas, reach out to us. 

We would love to connect with you!

We welcome all hands and hearts!

If you want to get involved alongside us, reach out and let us know your availability and talent. We need help with legal, social media, design, fundraising, grant writing and more. It can be a one-time thing or something recurring. 

Our team is awesome and easy to work with!


Share the Mission with Friends and Family

Send an email to 20+ friends and family members spreading our word, our mission and feel free to use the template below or personalize your message.

Help us advocate and raise awareness

Follow up and Share our content across all social media. 

Our handle is always @vatpasealliance across all platforms – Facebook, Instagram, LinkedIn, X (Twitter), Threads.

You can build on the post suggestion bellow, together with some unique graphics!

Email sample to share with friends and family

Join v-ATPase Alliance in Changing Lives

Hi Friends,


My family/My good friend is affected by v-ATPase Rare Genetic Syndrome. This is an ultra-rare genetic disorder and there isn’t much information available. Even after receiving a diagnosis, families still don’t know what to expect, how to manage it, and what the best care plan should be.

It would mean so much to me if you would support this Alliance. They are the only organization in the world aiming to unite families, advance scientific research to know more about these conditions and enable the development of effective treatments for v-ATPase children. They are just starting, but you can see their dedication and how much they have already achieved on their own. Their effort can be multiplied if we help grow their reach, spread their mission and vision, and contribute to help achieve their goals, which are our goals.


So, just like I am doing, please forward this email to your contacts, learn about this organization and, if you can, support their cause. All information can be found at www.vatpasealliance.org 


You can also check out their social media at:

Facebook: https://www.facebook.com/vatpasealliance

Instagram: https://www.instagram.com/vatpasealliance

X (former Twitter): https://twitter.com/vatpasealliance

LinkedIN: https://www.linkedin.com/company/vatpasealliance/


Thank you for your support!

Best,

Your Name

Easy Share

1) Copy-Paste to your email.

2) Add Contacts.

3) Send!


We appreciate you!

Email Now

Social media share suggestion

My family/My friend is affected by v-ATPase Rare Genetic Syndrome. 

This is an ultra-rare genetic disorder and there isn’t much information available. Even after receiving a diagnosis, families still don’t know what to expect, how to manage it, and what the best care plan should be.


It would mean so much to me if you would support this Alliance. They are the only organization in the world aiming to unite families, advance scientific research to know more about these conditions and enable the development of effective treatments for v-ATPase children. They are just starting, but you can see their dedication and how much they have already achieved on their own. Their effort can be multiplied if we help grow their reach, spread their mission and vision, and contribute to help achieve their goals.


Will you please β€œlike” and share this post with your networks, learn more about this organization, and support their cause if you’re able? 

Please also follow their Page at www.Facebook.com/vatpasealliance and their Instagram at https://www.instagram.com/vatpasealliance Even more information can be found at www.vatpasealliance.org.


Thank you for caring about the children and families impacted by this ultra-rare disease!


#vATPase

#CareAboutRare

#RareDiseaseAwareness

#nonprofit

#2024yearofAction

#ATP6V1A

#ATP6V0C

#ATP6V0A1

#ATP6AP2

Easy Share

1) Copy-Paste to Facebook, LinkedIn or Instagram.

2) Add graphics/images to use along with the publication in the link bellow.

3) Post and Share!


We appreciate you!

Graphics
Donate

Copyright Β© 2025 v-ATPase Alliance - All rights reserved.


We are a REGISTERED 501(C)(3) NONPROFIT organization.

  • Home
  • Privacy Policy

Powered by

This website uses cookies.

We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.

DeclineAccept